This week started 60mg/10mg and 10mg day I felt fine, but today 60mg I felt like I was run over. Was sweating uncontrollably, stomach ache, tired, achey and in combination with my soreness from yesterday's workout was not a good combination.
I emailed my doctor to see if perhaps we can ween down the higher dose days and hoping she will respond soon.
I don't think my body likes that large of a jump but last week was 15mg/60 so I'm not sure why 5mg would make that much of a difference but drugs are funny.
I have to say though that I am glad I have my fellow Cidp ladies to lean on during these days when I'm feeling miserable. Had a nice chat earlier today, it's just nice to have someone who understands what I'm going through. I have a lot of love and support surrounding me and I am so grateful for that but sometimes it's hard for people to relate to me.
We watched the new tonight show tonight and The evolution of hip hop dancing skit was hilarious. I love Jimmy Fallon! I'm very curious to see what Seth Meyers does with late show.
I'm feeling very tingly at the moment, I took my evening gabapentin. I feel tingly in a strange way. Especially my hands. I noticed that since I cut my nails my finger tips are more sensitive. Is that weird? I feel like it's kinda bizarre, but everything about my body is these days.
I'm getting nervous about my PT appointment Wednesday. I don't know why but I always get nervous. I'm hoping to get the harness on the first go and beat my times. Last time I believe it was;
2 mins 30
1 min 30
1 min 45
I can check with Ericka when I get there.
I know Christina said it was over 6 minutes total, but I can't get the numbers to add up!
Anyhow my goals sometimes are a bit far fetched. My goal is still to be wheelchair free by my birthday. I am not sure if that's going to happen but I'm staying positive.
I am starting to feel like I can feel my muscles working more in my legs. I know that sounds stupid or maybe it's all In my head. Just know that my Cidp anniversary is coming up in June and I really want some noticeable differences to happen by then.
June 7, 2013 first IVIG
Let the count down begin
That's 107 days for constant improvement! I think if I can 2 additional laps a week that's 30 more. I really have to measure the distance between my rooms so I know how much I'm actually walking!
So thanks in advance to everyone who have been my constant cheerleaders!
For as tired as I was all day I was hoping that I would have passed right out. But here it is 3:30am and I'm still awake.
My stomach is angry something fierce. I was glad to see a ginger beer in my fridge! So I've just slathered on my stretch mark cream and dived into vampire diaries like a teenage girl ha ;)
Oh Boone from lost with terrible hair!
Missing my amigas lately and I hope I get to see them all soon <3
I just want to say that I know this has been a hard journey for all my loved ones involved and it's all a learning experience for me and all of you. Thank you all for your patience and understanding through all of this. I love you so much.
1 comment:
You are amazing and wonderful... it is hard to stay positive in moments like this and you are doing a great job of that. I get nervous before PT too.... it hurts! Keep up the attitude girlie! I love you...xoxoox
Aunt Anny
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