As of Monday I have been trying to cook all meals at home and start eating better in hopes of shedding some steroid weight and feeling better about myself.
So far things have been going alright with with exception of last night when I felt like I was starving!
Yesterday I had physical therapy for the first time in 2 months. I had been doing exercises at home in Michigan. The good news is that she thought that some of the previous exercises are now to easy for me. The bad news is that I now have a harder regimen that includes more work outs with weights. I guess that's not necessarily bad just hard. My least favorite thing still being the standing/leaning exercises. She said I am doing them better now than I was before but I still need to work on them. I just don't like doing things that make me feel like I am going to fall. Have done enough falling the past few months!
She wants me to also work on walking backwards since I made the mistake of telling her it makes me uncomfortable. But I guess that's life doing a bunch of stuff that pushes you out of that comfort zone.
After the appt yesterday I can honestly say I had my as kicked. It's the most sore I have been after a PT appointment. I like it tho! Means something was working ya know? Next appointment it's back on the treadmill with the harness. I cannot wait until I get to a point where I can do it without the harness because it's such a pain in the ass to get that on! I know all in due time but I really am quite impatient!
Got an email from my doctor today saying that my most recent blood rest showed elevated liver enzymes or whatever (not entirely sure that's the correct word) she said it could just be because I'm sick and now I have to have another blood test next week. I'm hoping that's the case and it's not something more serious. I also requested to be tested for hemochromatosis since my grandpa had it and there's a chance I could inherit it as well. So that's on the agenda for next Friday.
I started my new water pill today that is supposed to help with the swelling and bloat from my steroids. Currently on 60mg/25mg alternating days. Not entirely sure how long it takes for this to work but I'm hoping not too long because my legs feel incredibly swollen! I have however peed way more today than I have in any other day this month! So guess it's doing something.
They also called and said my medical records are ready for pickup. I requested them for my SS disability application since it requests "medical evidence". The girl at kaiser said the SS people will end up requesting it anyhow but better to go in prepared. She told me they probably won't even consider paying me until I run out of state disability which is fine, but I still want to have everything rolling before then. I heard the process can be excruciating for some people, while others get accepted the first try no problem. I just don't want to end up in a situation where I don't have any money coming in especially since I have to pay for my medical insurance out of pocket currently. Which was still cheaper directly through my insurance company than any of the other sites such as covered California. I wanted to stick with my doctors and everything I am comfortable with! So anyhow here's hoping that when they call me for my interview things will go well and I won't have any issues.
Currently I can't even really use a public restroom Alone or drive or sit for extended periods so hopefully they will see I'm not trying to pull a fast one.
I am starting to feel stressed out about finding a new place to live. It seems any place we find that is some what decent they don't accept pets or they have an application in process. The thought of staying here another year with all thaw stairs just makes me feel filled with anxiety. I don't feel like I can really do as much for myself when I have to involve 16 stairs between myself and the kitchen.
I am trying to remain positive that some of these places will start getting back to andrew about showing him the properties but as for right now I'm just waiting. And anyone who knows me knows I am no good at that!
Now that I am back in California I am definitely missing my friends and family. Especially those of you that took time out each week to hang out with me. I definitely thank my lucky stars for all the great people in my life! Even those people that have said terrible things about me have just made me a better person. I can't help but think of how someone said it was Karma that all this was happening to me because of something they were told I said about someone. I like to think of myself as a pretty decent human being so if you think this is the universe serving me up a big spoonful of karma then I just can't help but laugh. When dealing with something so life changing like this I can't do much but laugh. I mean there are days that I cry as well but those have become less and less lately.
So tonight Andrew is going to a hockey game. Not entirely sure what I am going to do while he's gone but I am thinking a movie perhaps.
Saturday he is headed off to a beer festival and I am going to hang out with my girl Cyndee and possibly Amelia :) it's been awhile since I have seen my ladies so I'm excited about it! Hopefully I won't be too boring.
Overall today has been a good day.
My legs currently hate me from yesterday's workout and I tried to do some of my exercises earlier as well go keep the momentum going. My feet are quite tingly and have a weird buzzing shock up through my big toe. I sometimes think perhaps it's my feet finally waking up but I don't think I am quite that lucky yet.
It's been almost 6 months of my immunosuppressant and my neuro assures me I should start seeing some changes soon. I have read online though that it could take a full 12-18 months to really see results. I am hoping that's not true in my case but guess only time will tell!
I'm feeling extremely tired for some reason though. I guess I am not used to going to bed at 2am and waking up at 9 and staying up all day. Going to have to work on that. Toasty was being quite bratty earlier this morning and when she finally went to sleep I couldn't fall asleep. Hopefully that means tonight I can fall asleep before 2am. Man steroids are a terrible drug yet wonderful since without them I couldn't even walk.
Well time for dinner now so I guess I will call it quits on this blog entry.
Hope all is well with everyone
Xoxo
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