One is the loneliest number

So I've been trying to check my sugar more regularly just be be more proactive. 

Today I took all my meds and then an hour later I took my reading before eating. 

It was 117. 

My doctor told me that it should be below 100 in fasting state although American diabetes association website said 130. So of course I freak out and text my mom and ask if she thinks my medication could have skewed the reading at all. I try to just brush it off as I will try again tomorrow as it was just a bad reading and I did have sugar last night before bed. 

Then I decided to jump right into my exercise for the day. I downloaded a podcast and stood at my walker.

Around minute 30 my knee started acting wonky and I wasn't sure I would make it past my last time of 31 minutes. 

While I was standing at my walker Toast was trying to get my attention as she was wanting to be fed. 

She started loving up my legs, then tried to open the drawer, loved up my walker and lay there for awhile. So then she decided she was going to get my attention so she jumped on top of my mini fridge fridge and put her front paws onto my walker and grabbed my arm. It was seriously so cute I wish I hadn't been focusing so hard on standing up right so I could have gotten a picture!

So it turns out being in competition with myself is quite beneficial as I made it past 45 minutes! 

My legs and knees were quite blotchy and purple after but hey did it! I was quite impressed with myself although my knee I noticed wants to lock into place which I'm not entirely sure how to break that habit. 

The rest of my day was quite laid back, I went through old emails, Facebook posts and appointments to try and put together a timeline of my year last year. I figured if I do decide to try and write a book one day I want to have all my dates so I can paint the appropriate picture. 

While looking through everything though it started to really bum me out. 

There was so many things I would have rather been doing then feeling like crap and so many things I missed out on while I was trying to figure out what was wrong with me with what seemed like no help from regular doctors. And let's not mention all the money I spent on my health instead of something fun! 

After I did this and worked on my typing for a bit it was almost time for Andrew to come home. I was starving but figured I would wait for dinner instead of getting a snack in between. We ordered a carry out from Opa! The usual location we go to was closed so we ordered from a new one. The gyros didn't quite taste the same though so it was kinda disappointing. 

After we eat I start to feel a bit weird and start to get a headache. 

I decide to check my sugar levels again. 

For some reason I decide to prick my ring  finger which is one of the more numb fingers I have and let me just say while it was numb it hurt like a bitch! 

Sugar level 183. 

I haven't even eaten any sweets today! It has to be carbs. I read online that a high reading can also be brought on by stress or a virus that your body is trying to fight.

I'm going to try again tomorrow and see what happens. 

These past few weeks I have been feeling very emotional. I'm trying not to be but my self esteem is feeling pretty low with my current appearance. 

As much as I have been enjoying wraps lately I think perhaps maybe I need to cut back on my carbs and dairy intake.

Seems no matter what I do the steroid weight doesn't seem to want to budge. 

But I can't stop trying since I won't be off the steroids until August. I need to get something in the works that works! 

Weight watchers worked before but I'm not sure I want to spend that $18 a month on it or if it would even work with everything else I have flowing through my system. But I need to do something! 

I sent the information requested to the SS office on Wednesday. So here's hoping that I hear back soon.

I don't want to plan anything until I know what is going to happen with that. 

I would like to visit Michigan in the summer although from what I've heard from fellow Cidp patients the heat triggers symptoms as well. 

I remember it being kind of bad but wasn't sure if it was from the IVIG or just this stuff in general.

Just trying to take things one day at a time but some days I find that hard cuz I want to plan ahead ya know? 

Oh well that's all for now I am still trying to figure out video posting to this blog but perhaps a new video tomorrow on my Facebook page ;) 

Xo