This breaks my moms number one rule of trying new things while home alone but I figured I was close enough to my bed not to hurt myself too much.
*This rule applies to me and my dad for the record since apparently both of us only seem to get hurt when she's not home.
So upon first try right knee is all " what exactly do you think you're doing?" Then promptly I am sitting back on the bed.
Second attempt I move my butt closer to edge of bed, feet shoulder width apart imply rocking lotion learned in PT and push up off bed. Knee cooperates this time but is still annoyed with me and decides it's not playing this game.
Third attempt pretty much same as second attempt I get to almost standing position and just can't quite extend my legs out all the way.
Needless to say this was a complete failure in the sense that I wasn't able to get myself upright without my walker. I do have to say that I find the fact that I even wanted to give it a try a success in itself and if anything I did feel it in my leg muscles afterwards so exercise on top of it!
Then I worked on my handwriting which is finally coming along to a point that I can actually read it. The thing is though that I have to write very slow and concentrate on every letter to make sure that my hand does what I want it to.
I have also been practicing my writing with my left hand as well. Mostly because that hand is less numb in comparison to my right. Also it may be because I heard on a television show once that people who suffer a trauma and have to learn to use their other hand it makes them smarter because it triggers a different part of your brain. Now I'm not by any means saying this is true, but I mean who wouldn't want to be a little smarter by teaching yourself a new trick?
My left has a ways to go but I'm pretty sure it's still better than what my right hand could produce back in August.
So I worked on that awhile and then drew a hideous picture in my notebook that Sam gave me for Christmas since drawing and doodling was on the list of OT exercises to help my hands. I would take a photo but it seriously is too embarrassing, my lack of drawing skills that is.
So then I decide to mosey on into the hallway to look for something in the desk. I say mosey since I have to slide off the bed and then butt scoot out there in order to do anything. If only my damn balance would improve! Anyhow so while I'm doing so I notice that my stomach is quite itchy and I look down and low and behold another disgusting stretch mark!
So anyhow I can't find what I'm looking for In the desk and now I'm annoyed about the stretch mark which I promptly text my mom, Leah and Samantha about and then attempt to get back into bed.
To do so I put my arms both on the bed and push up with my legs. While doing this I do something to my back and roll around In pain for a good 5 minutes and then text Andy to tell him about ugly stretch mark and now tweaked back!
After feeling sorry for myself for a few minutes I get back up by my pillow and snuggle in with my baby bear.
While snuggled in I looked through my cookbook to get some ideas for meals for the next few days. This cookbook is pretty amazing for anyone that is counting calories or fat or just generally wants to eat better.
At this point I'm still feeling pretty crummy and now I'm afraid to take the sudafed I bought since last night after taking it I felt very strange. Like almost like I was high. Not that I would know what that's like. Ahem
So anyhow I pass on the sudafed and just chill out with my little toasty.
Meanwhile I get a text from an old friend saying she will be in town soon and would love to meet up! Which is exciting it would be nice to see her again it's been awhile and I didn't get a lot of time to chat last time since it was in a party setting and you know how that goes you jump from group to group trying to talk with everyone and before you know it then last person is leaving and you are passing out. Well that's how it used to go pre-wheelchair days. Now I'm not sure I could make it til the end of a party, but I guess you never know!
Hashtag old lady status :)
Andrew gets home around 7:45ish. I say ish cuz I don't honestly remember and I'm not entirely sure that it's at all important to the story but for some reason I felt the need to include it. So anyway let's say it's 7:45, he comes upstairs to see if I still want pierogies for dinner. Of course I do because they are delicious and I don't care if they are frozen they are delicious! And 2 servings is less than 400 calories so that's a score in my book.
So I decide to venture downstairs.
That's 16 stairs to the main level in case you don't recall! Once I get to the bottom I can feel the effects of this cold/sinus crap and feel exhausted. I get into my wheelchair and head into the kitchen to prepare some stuff for my upstairs fridge for the next few days for food.
I get totally side tracked with measuring out my low fat cheeses for wraps that I completely forget that I have Turkey bacon in the toaster oven until Andrew asks me if it should still be in there.
So I look over and the oven is smoking, whoops! No wonder he was asking. The poor turkey bacon was literally black, like the Griswalds Christmas turkey! Although I don't think all the water in the world could have saved it.
Into the trash you go!
Resign our lease for this place for an additional 6 months. That seems like an eternity to deal with these stairs but hopefully something good will come along by then. What's 6 more months at this point right??
Pause for a break of deliciousness known as pierogies with light sour cream and jalapeño ketchup. Amazing! I feel like I have just eaten a gourmet meal even though they came from a box. I'm being serious they really were that good.
Once I'm finished with dinner I head back into the kitchen to prepare round 2 of turkey bacon this time I manage to get it crispy and not on fire. Slice up my avocado and add it to my grocery bag for andrew to bring upstairs for me.
Work on doing some dishes from this week, I find scrubbing pots and pans is a good workout for my hands.
Usually I always end up covered in water though since my chair isn't quite high enough for the sink and tonight was no exception. At this point I'm feeling very drained and exhausted and decide I probably should head back up the stairs before I get too tired.
Now no one will probably understand this unless you have a lot of nerve pain going on but trying to sit on hard stairs when your legs and butt feels like jello is quite and interesting feeling.
My hands now feel jello like and very tingly as well which leads me to feel uneasy about this whole process.
I like that I can see my foot placement in the mirror of the downstairs bathroom so at least for the first 8 steps I know that I am actually on a stair!
Anyhow I feel like I'm dying on the stairs because I feel like crap and this additional weight isn't making any of this easier on me at all. Reach the top of stairs feel like I have ran a marathon and breathing like I have too!
Mosey on back into bed to veg out.
Check temp 99.5, stupid low grade fever is back. I'm on day 3 of antibiotics and hoping this is guna work this time but the presences of the fever has me worried.
I've been avoiding Tylenol since my liver enzymes are so elevated so I'm not sure what else to take to reduce a fever.
Guessing I should probably try an Aleve which I don't think is hard on your liver, but I don't really know.
Anyhow that is my update.
I would like to take a moment and say that I am quite thankful for the friends I have met in my Cidp group on Facebook. While there has been a few people that I just couldn't take their know it all attitudes (block button!) I have met some awesome people in there who are/ were just as scared shitless as I am/was about things. It's been a tremendous help knowing these people are out there!
Night all xo
(My crazy hair today and my terrible sunspot that looks like a 3rd eye)
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