I won't go into to much detail but I have to say I'm glad it happened while I was here with my mom. As embarrassing as some things are it's easier to deal with when it's your mom helping you out!
So big thank you to my mom (and all you moms out there) who help take care of your kids no matter how old they are!
Xo
So I've spent my last two days in bed being a sickie :(
Tuesday was my typical bestie day.
Coney Island with Shauna, Ethan and Avery as well as Natalie and Eva.
The kids fought over who would sit next to Eva since she was new and Eva was very shy but so adorable. Can't wait to see them all again on Tuesday!
I loved when Shauna called me dawnie and Ethan was like "Dawnie! Her names not dawnie it's dawn!" Ha I love him.
He still says I'm not allowed to call him boo! I've called him that forever!
Wednesday night was the painting party for Kattee's birthday! We had a rough start to the day though. Stopped to pick up Adult beverages and get back in the car and Debbie's car won't start. So she asks this guy if he has cables and he says no. So she asks someone else since it's like 7 degrees outside. So the guy who originally said he didn't have cables came back to jump the car. He kept wanting deb to move her car back but it wouldn't go into Neutral. Thank goodness some random guy came over and gave a few pointers to the guy and then the car started! SUCCESS!
So we are then on our way and between the 3 of us our phones give us 3 sets of directions. Deb said my directions must have had "avoid the ghetto" checked ha! Although we kept getting honked at so clearly we were in the damn ghetto!
I hate being late it stresses me out lol! We ended up arriving like 15 minutes late and completely frozen! My hands were cramping up they were so cold!
The painting class was fun! I jumped right in and slapped on my first coat of red paint as soon as I sat down. Everyone brought food that was really good and everyone was super nice :) I was really glad to see Kattee and celebrate her birthday with her! She's such a fantastic lady and I'm so thankful to have her in my life
This one was in Wyandotte called pips painting pub so if ever out that way check them out!
Debbie, Michea and I had quite a few laughs on the way home, we also took 75 which was like a straight shot in comparison to my ghetto directions from google maps! Although G maps did find us 75 lol! I love these ladies and it's so crazy to me how long I've known them! Damn we are getting old ha :)
Thursday was my bad day sick wise.
My mom did finish my lovely scarf though so that cheered me up a bit
Also received a funny pic from my man
I'm so glad that Nikki and Andrew were finally able to go to a game together!
I haven't been able to go to any games since my CIDP diagnoses. I cannot walk the stairs so I can't sit In our seats since they are upper level and lots of stair walking. Not exactly wheelchair friendly. I'm just glad that Andrew has been able to find people to go with him! I want him to be able to still get out and have fun even if I can't go. I've been trying to slowly but surely try new things.
I have a lot of equipment these days that I have to bring along with me whenever I go anywhere. Wheelchair, cushion, and walker. It takes me a good 15 minutes at least to get from the living room out the back door and into the car.
Not to mention getting back into the house and into my room afterwards since I'm usually tired it takes me awhile especially if I decide to butt scoot all the way. Once my knees will finally start climbing stairs like a normal person these simple tasks will start becoming easier. My legs and feet lately have been chilly.
I'm not sure if that's a good sign or not since my feet are usually on fire.
I've been sporting leg Warmers with my night gowns and that seems to be helping my chilly legs. Looking very 80s but I'm liking it!
So here we go the weekly breakdown:
Leg status:
Legs feel like they have been doing ok since doctor upped the steroids again. There's only been a couple times of the knee almost giving out. They feel different but still not "normal". Tingly and numb but in a different way then normal. The muscles feel sore like after a workout so I hope that's a good sign
Mental status:
Had a few days where I was feeling down and out. I didn't really want to do anything but I pushed past all my crap and tried to suck it up.
Through all of this I try and remain positive but I start to think about all the things that have changed or will change.
I'm in the process of trying to talk with my boss about possibly starting to work from home. It's been 6 months since I've worked and it would be nice to finally get back into a somewhat normal routine. As normal as possible with everything that's been happening.
Being sick put me into total baby mode though. Had a complete meltdown on Thursday including epic tears. Still feeling pretty miserable but hoping I will wake up tomorrow feeling as good as it gets!
Heart status:
Feeling homesick
Missing my lovely bf who will be here in a few weeks!
Missing my little fur babies as well, this is definitely the longest I've ever been Away from home. I'm ready to get back but at the same time I'm not looking forward to all the stairs again.
I have been on Craigslist daily looking for houses to rent. It's hard to find one in a neighborhood we like that is comparible to the size of our current place.
30 stairs with a disability is so difficult.
I'm going to miss my Besties and I really hope that once I'm home people will actually come hang out with me,
I feel like I'm going to be really lonely but I'm hoping that's all in my head.
Well this sickie is guna try and get song shut eye.
Night xo
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