Sunday, December 29, 2013

Random...

So with my stay here coming to an end I have been focusing on looking for a new place to live upon my return to San Jose. 
I have to say that it has been a bit of a challenge since a lot of places involve several outdoor steps.

My knees are not fond of steps just yet. I was able to walk them at home with help but they leave me so sore for days on end afterwards. I conquered a few steps at my aunts house to get in on Christmas Eve and one at Andrews parents and I am still paying for that. I just keep telling myself that baby steps and I will eventually be able to do them again like a regular 32 year old. 

Trying to find a place with less stairs than we currently have, which is 30. Indoor stairs are alright since I can do them only butt but outdoor steps id prefer like 1 or 2 not anymore ha. 
A lot of these places claim "wheelchair accessible" but then it says like "8th floor" so I don't know how accessible they really are. 

During this trip here I have spent a lot of time going out with friends and family and experiencing a lot of different situations when it comes to handicap friendly places. Apparently there is a minimum requirement to qualify as handicap accessible and trust me some places do the bare minimum. 
Never really realize how hard it is for someone with a handicap until you actually have one and have to deal with it. I find that I almost never can get a handicap parking spot even tho I have a sticker. About 50% of the bathrooms re chair doesn't even fit in there. Thank goodness I can use my walker for those but I honestly don't know how people who only use a chair can make it work! I have so much respect for people that deal with all this stuff daily and have for their whole lives. 

Sorry got off topic, so looking for a new place is going to be interesting. The whole getting into the place for one, then I definitely will need to make sure that j can get my walker through the bathroom door. That seems to be an issue I've been having here the past few weeks. Most doors I have to do a weird pivet thing to get through which is fine but some I don't fit through at all and have to go through sideways which is very difficult for me. 

My legs feel a bit stronger than they were before and I have been able to balance a bit and open the gate here. 
I've gotten in and out of my chair a bit on my own yesterday and didn't have any issues. Which is a plus. I have been a bit "gun shy" if you will since the last two almost falls. 

However today my legs are in a very "I hate your walk" mode. 
My knees do not appreciate the way I have been walking but I can't seem to change that at the moment. I just hate that feeling that my knee is going to give out and I will fall. I keep trying to tell myself I'm not that tall so I don't have far to go if I do, but I still stress about it. 
People wonder why I don't want to try and venture into their houses this is why! 
At any given moment my legs decide they have a mind of their own. Which in most cases I am ok with but if it happens at the wrong time it could be problematic.

Worked on my writing today and I have to say while it is getting better it still needs some work, my hands feel very swollen and large. I feel like I have lobster claws and not hands. I really want to come off this prednisone but at the same time it freaks me out since the last time I got down to a lower dose I almost fell twice :/ I don't know what is worse. I just want to feel better already! 

Doesn't help that I have been trying to fight off the plague of the century. I've had a fever for the last 4 days and all I want to do is sleep but I have been trying to get up at least every hour or so to keep my legs working, even tho they hate my guts. I can't wait to get back and see dr cho and see what she has to say upon examination. I also made an appt with my regular doctor as well provide said plague isn't gone by then. 

So tomorrow is New Year's Eve and I'm spending it at home with Wylie. 
 I'm hoping he will be good and not want in and out a million times. My whole family is going to the ZBB concert and I think Andrew is going to a party. So that leaves me and the pooch! Hopefully I will be feeling a bit better and can at least enjoy my day/night. If not I may be cozying up in my bed and watching a movie! 

I'm really hoping that 2014 brings me some better news as far as my Health goes and all around just a positive year! 

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