The weather has been hit or miss had a few days that sitting on the deck in the sunshine was good (which my walker doesn't fit through the sliding glass doorway what the heck?) and then a lot of rain. Now it just seems to be cold.
Sadly this is just the beginning of the cold too! Although I've been sweating like crazy in this house since I've been here so I guess the cold isn't too bad.
Been missing andrew and my fur babies especially Rollins. He has been my little nursey for the last 5 months and always cuddling and cheering me up. No baby snuggles here all the babies are afraid of Wylie and I can't say I blame them lol.
Wylie is still adjusting to my wheelchair and the fact that he has to move out is the way for me to open the door for him ha he's liking to play the victim though and acts like I run him over even though he runs into me. Little brat.
Legs have been going through a bit of an adjustment phase. They were incredibly sore the first few days just from all the additional walking I had been doing. Then they started doing this thing while I was walking one would kick out and I was convinced I would fall but that only lasted a few days. Thankfully things seem to be going Ok now with the exception of walking backwards. I'm not sure if it's because I cannot see my feet or what the deal is but when I go to walk backwards to get into my chair my right leg gets a bit wonky! I guess it's just one of those things that I need to practice.
It has been really good for me to see friends and get out and just take my mind off things for awhile. It's nice for a few hours to forget that I'm sick and that I'm jealous of everyone who can just pickup and run to the store or go to a party without worrying about the bathroom situation or how I will get in the house.
I really have been trying to worry less but those things are always in the back of my mind. I want to be comfortable where I am and it's hard for me to accomplish when there's so much unknown.
I'm feeling very much like a teenager these days sleeping in my old room, having to be home before my parents go to bed and texting in the dark.
Hoping eventually to master the stairs and getting into this house so I don't need quite as much assistance but it's only been a week so I'm trying to cut myself some slack.
In the spirit of November and Thanksgiving here are some things I'm thankful for:
My parents! They have been such a big help through all of this and I couldn't be more thankful. I know the sacrificed seeing each other and then had to travel back and forth for months on end just to help me out. Countless doctors appointments and therapies they took me too and not to mention 5 months worth of treatments! 5 days for 5 hours a day. And not to mention all the help with my pants! ( I so owe you guys when you get older and need help)
I'm not sure what I would have done if they weren't able to do so.
Andrew I'm not sure what I would have done from the start without him. He stayed in the hospital with me for days keeping me sane. Countless dinners he picked up and complaints he listened to. And mostly putting up with me when I was feeling very cooped up in the house.
I know this has been extremely hard on the both of us but I know we will just become closer because of it. It's guna take some time but I will get back to where I used to be and this will all be a distant memory!
Family and friends who keep me positive and lift my spirits up. I keep saying it takes a village and I believe that! It's crazy the power of a positive attitude and I keep trying to see things that way. I've been very open and honest about the way I have been feeling and thankfully there have been people there to listen to me and just hear me out. Sometimes I get frustrated and really just want to vent and blow off some steam. So thank you to those of you that have been there! Also thanks to those friends who have taken the time to come see me, and haul around all my crap. I know I have a lot of equipment these days but it really does make me happy to get out and see people.
I'm thankful I can walk!
I know it's not for long distances right now but any walking is better than what I was doing. Looking back I've come a long way!
I'm thankful their was a neurologist at the ER that knew what was going on with me. Granted it was after like 500 blood tests, a spinal tap and an emg but thankful none the less! There are people that go years without ever being diagnosed and without a diagnosis go untreated. CIDP untreated can result in being wheelchair bound which as you all know my one goal is to become less dependent on this chair and more dependent on my legs again.
Ok I think I'm done for the day.
All this thankful talk has me craving some of Gma's famous stuffing (ha although aunt Carol has been preparing it for years) and a slice of pumpkin pie! I can't believe it's already November! Where did the time go?
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